Transcript
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The views expressed in this podcast are solely those of the podcast host and guest and do not necessarily represent those of our distribution partners, supporting business relationships or supported audience.
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Welcome to Transacting Value, where we talk about practical applications for instigating self-worth when dealing with each other and even within ourselves, where we foster a podcast listening experience that lets you hear the power of a value system for managing burnout, establishing boundaries, fostering community and finding identity.
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My name is Josh Porthouse, I'm your host and we are redefining sovereignty of character.
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This is why values still hold value.
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This is Transacting Value.
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You know, it's really up to us, as patients and humans, to own our health and be armed with knowledge and stand up for ourselves whenever we are put in a position like this.
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This next conversation is not medical advice.
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Consult your primary care provider prior to any treatment changes.
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Today, on Transacting Value, who can you trust when a misdiagnosis makes you think you're crazy, or medical professionals come and cause you to question the validity of your own self-awareness?
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We're talking with a podcast host and founder of Rebel Health Collective about finding the right doctor, asking critical questions and navigating medical care to reinvigorate your sense of self.
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His name is Josh Bostick Guys, I'm Josh Porthouse, I'm your host and from SDYT Media, this is Transacting Value, josh.
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What's up man?
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How you doing?
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Doing well, doing well.
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I got a full cup of coffee and another Josh on the line, so I can't complain.
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How about you?
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I just did the same thing.
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As a matter of fact, just did the same thing.
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But, dude, yeah, I really appreciate it.
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Man, I watched a couple of your episodes and conversations earlier today on your channel and you've got something interesting happening.
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I think it's like you're not just having conversations about health and diagnoses, you're talking resources and perspectives, and stories and depth.
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Take a couple minutes here in the beginning.
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Let's do this.
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Who are you For anybody who's unfamiliar?
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Where are you from?
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What sort of things are shaping your perspective and brought you around to all these things?
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Sure, yeah, I think if you would have asked me that three years ago, I would have started off with my profession and some of my hobbies as being who I am and what I identify as.
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But today I am a father and a husband.
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Those are the four most important things in my life and the last three years have really shaped that and really transformed my outlook and really what I'm all about.
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I mean, I want to be a good employee, I want to keep my job, I want to be a good neighbor, but my son and my wife are the most important things in my life and they're my why, as to why my values have changed and why I guess really my perspective on myself have changed.
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So if anyone asks me, that's who I am.
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Those are the two most important things to me.
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But I'm out in Fort Worth, texas, so right, kind of in the heart of North Texas.
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I work for a government contracting company, for the DOD, and you know, really I'm an advocate too.
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That's probably my biggest identity.
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That made me want to start the podcast and Rebel Health Collective as a whole.
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And what is Rebel Health Collective?
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Just a catchy name and it sort of flows nice, or did it come from somewhere?
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It came from my three years and the experience that I've gone through.
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I would say that going into the last three years I was someone that did the yearly annual blood workup, went to the ER or the quick med ER places when I had the flu or something like that, but I was probably the average American in their medical.
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You know knowledge and influence in the system.
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But Rebel Health Collective came from working outside the norms.
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It's stories and community and information that you don't hear in the four walls of a doctor's office and there's many reasons why you don't hear in the four walls of a doctor's office and there's many reasons why you don't hear that.
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And to your point earlier, that's a lot of what I'm trying to bring out and build a community around is advocates, people who are truly going through it and have stories to tell, tips to give and experiences to share and just transferring that knowledge and creating a place where people can find others.
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It may not be someone that's going through the exact same chronic illness, disease, mental health issue, anything like that.
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It's just building a community of someone whose people are going through things and a safe space to bounce ideas off and a safe space to bounce ideas off.
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Okay, so you mentioned three years ago a couple times.
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What's so special about three years ago?
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So three years ago I went in and, as I mentioned, did my normal annual blood workup.
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Expecting things to come back is the same as I had before.
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Maybe cholesterol is a little high, nothing out of the ordinary.
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But I actually got a call from a nurse saying you need to go to the ER right now.
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Whatever you're doing, drop it and go to the ER.
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My blood sugar was near 400 at the time of the blood draw and then my A1c was 12.7.
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So almost 13.
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And the average American, where they want it at, is between 5.4 and 5.6.
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So definitely elevated.
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Yeah, what does that indicate?
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That indicates well can potentially be type 2 diabetes, but in a lot of instances it's type 1 diabetes.
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Well, okay, because insulin is not breaking down sugars.
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Correct.
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Yeah, so it can be the two where you're just extremely insulin resistant and you can usually see that trend over time.
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Over several years, your blood work in A1C is going to start trending upwards to a higher number.
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But from 2019 to 2020, my A1C just skyrocketed overnight, so definitely indicated that my pancreas wasn't producing insulin through the beta cells and had some autoimmune issues going on.
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Whoa.
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Wow, and so that started this whole journey for you individually, and that's also where this picked up then for Rebel Health Collective.
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Correct.
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Yeah, so that's the first time that my eyes were opened up to a different side of the medical system and really that stems with that first night in the ER.
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I was misdiagnosed right off the bat because of my age yeah, because of my age and my build.
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They basically said it can't be type one, it's type two.
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They gave me some metformin, which is a drug that helps lower your blood sugar, and I had asked do I need to get a glucose meter, check my glucose or anything like that?
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And the answer is basically no.
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Just take this medication and you'll be fine.
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And that was the guidance I was giving.
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Nothing more on diet, exercise things I can do.
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Just take these pills and you'll be okay.
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Okay, now is that really a shock, though, I mean, for everybody that goes into the ER or the hospital or to see their doctor.
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Of all the people that they see, they got to play to the average, I guess, to start for a baseline, because everybody's so different.
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You know what I mean.
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Was it that big of a?
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Not the diagnosis, that's a shock, but the process itself, the revelation.
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I don't think necessarily like someone going into the ER with the numbers that I had I mean that wasn't out of the norm or anything crazy.
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But I think the fact that it was just a one size fit all, whatever that doctor's experience was, that was what was kind of cast over me.
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There wasn't any individual treatment to it.
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It didn't say let's run some other tests.
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I mean, there's blood work that you can do to say exactly that it's type 1 diabetes.
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And why didn't we potentially run that?
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When I was there and essentially I walked out of the hospital and had thought about the urgency that that nurse had had and the treatment that I'd gotten from the ER and things just didn't really line up.
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So I typed in type one diabetes and Google brought up you know a list of symptoms and I checked every single one of them and those weren't talked about in the ER.
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We didn't walk through any of those.
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It was just your blood sugar's high.
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Here's some medication.
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What does that do to your outlook?
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I mean, that's like not the prognosis, I guess I'm sure that was pretty debilitating for a few days at minimum, but like the process itself it's.
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You don't even know your body as well as somebody else who's not in it.
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You know what I mean?
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That to me seems pretty eye-opening.
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It was, yeah, and I think that's what made me start realizing that I've got to advocate for myself and really, if something doesn't make sense, speak up.
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And I'm not trying to discredit doctors by any mean.
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I mean they do an extraordinary job, they have a ton on their plate, they have an education that there's no way I could ever complete.
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So by no means trying to knock anything from doctors, but it's really up to us, as patients and humans, to own our health and be armed with knowledge and stand up for ourselves whenever we are put in a position like this.
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You know, my gut feeling sitting on that bed was I need at least more knowledge than just take this medication.
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You know, at a minimum, if it would have been type 2 diabetes, I would have liked to have like a more in-depth conversation and I shouldn't have left until I was fulfilled with that and just from my prior medical experience that's.
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You know, I took it for what the doctor said and was on my way.
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All right, folks sit tight, We'll be right back on Transacting Value.
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Here's my bucket list for the day Read an article on a news subject, say only nice things about others and listen to everyone's opinions, because making things better requires change.
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Now, these changes aren't going to show up on your news feed, but they're things I can do, so change something today.
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It's not going to change the entire world, but it's going to change your world.
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Change is in you, from PassItOncom.
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At a minimum.
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If it would have been type 2 diabetes, I would have liked to have a more in-depth conversation and I shouldn't have left until I was fulfilled with that and, just from my prior medical experience, I took it for what the doctor said and was on my way.
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Well, you have every reason to trust the doctor.
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I think let's just say as a baseline here in the United States, you have every reason to trust the doctor.
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But then I think you're bringing up a good point.
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The ownership of informed consent falls to you, not the person presenting it, right, they're accountable for it, obviously, to tell you what's going on, and here's the end user license agreement for your treatment or whatever.
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But if you scroll to the bottom and hit OK, well, now it's on you.
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Right.
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Yeah, yeah, okay.
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But then I also think about I mean, you brought up concerns, you said yourself you brought up are we sure?
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Do I need to do anything else?
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Is there anything else I could try?
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For you know, these types of considerations, did you feel heard?
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I mean, how much do you say it before you're futile?
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I, I mean it goes back to what you just mentioned.
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I brought up the concerns but for whatever reason his past experiences, other diagnoses that he'd given patients he'd seen.
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He was confident with his answers and I asked the questions, he gave me a confident answer back.
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I was like, okay, sure, because he is a doctor, you do trust what.
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Asked the questions, he gave me a confident answer back.
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I was like, okay, sure, like you know, because he is a doctor, you do trust what they're saying and you know, I think that is the way it should be.
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We shouldn't go around questioning every single thing a doctor says by any means.
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But you know, in that case he stood by what he was saying and I believed him.
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Yeah Well, there's nothing wrong with that.
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We have a saying.
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Most of my career has been in the infantry in the Marine Corps, and this may be Corps-wide, this may be DOD-wide, maybe out to the contractors, I don't know.
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But trust but verify is a philosophy that floats around and permeates this entire military subculture.
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This sounds like one of those opportunities where, as long as you have the awareness to verify or know where to look or just come up with a couple of questions, even to more critically evaluate the accuracy of somebody else's assessment, you might have been better sooner or at least more in control sooner.
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Is that accurate?
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Yeah, totally.
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And I mean I think that comes to the Googling.
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When I was walking out of the parking lot.
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I mean it was that comes to the Googling when I was walking out of the parking lot.
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I mean it was a trust, but verify, I trust what you say.
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But something in my gut didn't seem right and all the symptoms lined up.
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So I was like you know, I should go see a specialist.
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I need to go see an endocrinologist that sees patients like me every single day, is accustomed to the blood work and tests that you can do to dig deeper into a diagnosis and whatnot.
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And that's when I made a specialist appointment and ultimately got the actual type one diagnosis.
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I've heard that before too.
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Going to see your primary care or general practitioner is good if you have something generic, but if you have something that doesn't seem to be as ordinary as a common cold or something to that effect a broken bone, consider somebody that specializes in it.
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Definitely yeah, and I mean with the ER.
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My look on it now is when you go to the ER, you have a limb that's hanging off and their goal is to keep you alive.
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They're not trying to be a specialist for you for the next several years, they're trying to make sure that you walk out of there and have a pulse.
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So also something to consider when you're going into a doctor's office what is their specialty and what are you trying to get out of it?
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Well, that's important too.
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Yeah, Education goes a long way.
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Self-awareness obviously on one hand, but the practical application on the other.
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And I don't know where that's taught outside of specialized medicinal schools, like nursing programs or whatever.
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To say well, for example, this is the role of an emergency room in any city planning consideration or medical trauma triage type process.
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But yeah, you're exactly right, we have a similar philosophy where if anybody gets injured, shot or whatever happens, the first thing that has to happen is get them off the X that's the expression that generally stands out with every branch Well, and maybe even outside the military.
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But the idea is, whatever the injury is, do what you need to in the most immediate sense.
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If you can't get it done within the first couple seconds and it doesn't need to be done within a couple seconds get them out of the way, first out of the kill box or whatever's happening in the kinetic environment, and then troubleshoot.
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And if for, for example, all sorts of training programs for special forces and combat arms professionals in any branch to stabilize people enough to then get them to emergency care, from combat trauma to emergency care, from emergency care to some sort of stable well, relatively more stable facility, and then whatever recovery and physical therapy.
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After that it's all a continuum, I guess is the right word.
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Yeah, yeah, where is that?
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I mean you're becoming somewhat of the resource guy.
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Where's the place that we can say, or is there a place that we can say, okay, this place maybe not by name but in capacity does these things, these places do these things.
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Or is that just in conversation and we just have to talk to each other?
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I think it's in conversation again just owning your health.
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I think there's so many platforms my podcast, a lot of what you have going on with your podcast.
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I mean it's real people.
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You definitely have doctors and experts and SMEs, but at the same time, you have just random, real people who want to tell their story and have things to give and, honestly, that's where I have found the most helpful information and the people who have spent the most time to help me is on some of those deep, dark holes of the internet.
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I mean, reddit has been my best source of diabetic information.
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I've had people get on Zoom calls, phone calls, facetimes, and we've talked for an hour and a half two hours and they've told me what's worked for them, tips and tricks and they always caveat with this may not work for you, but this is my experience and it's someone who's really going through it.
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They're jabbing themselves multiple days, multiple times a day, with insulin, they're pricking their fingers, they're having pumps that aren't working, and those are the sources that just have led me to control my diabetes so much better.
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And that's what my goal with Rebel Health is is to have that kind of a community and resource for people to reach out to.
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Yeah, that is pretty interesting and I imagine it's a fair bit fulfilling.
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It is, yeah, just the role that you're able to fill, on one hand, coming obviously first-hand experience coming from what's wrong with me, why is nothing working, what is happening, and whatever amount of questions come with that.
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To then, oh, finally now I've got some respite.
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To then, nope, never mind, that was wrong, I'm back where I started.
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Nope, nevermind, that was wrong, I'm back where I started.
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And then to get slingshot into the foreground of this is totally not what I was expecting, or whatever research you have to do, I assume, with nothing but a pamphlet or a trifold something, and then your own research skills, right, so where did you even start?
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How do you manage all those things mentally, let alone digitally?
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So when I did get the type one diagnosis, there are resources and trainings that they put you through but my blood sugar was still going all over the place.
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It was going super high.
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And then I was going super low to the point where I was like kind of getting dizzy and almost passing out throughout the day and I had a breaking point and always gets to me.
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But my wife was out on work travel, and so my son had just been born he was probably four months old at the time and we'd had dinner.
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I'd done too much insulin for the meal that I had and my numbers started just kind of plummeting.
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They're going straight down.
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I could feel the dizziness and the shaking coming on and I just knew like I've got to put my son somewhere, Like I'm not safe to hold him, I can't take care of him.
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I've got to put him somewhere safe.
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And you know, get over this, this low.
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And so I ended up putting him in his crib, just sitting backwards to his crib, listening to him, just crying, you know, as an infant does, and just sitting there, feeling completely helpless, not able to care for my son.
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Helpless, not able to care for my son, and at that point, I was just like this can't happen, this isn't who I want to be, this isn't the dad I want to be, and I started flashing through like basketball practice, baseball practices, things like that, and just thought that there has to be another way.
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Whatever I'm doing is not working and I'm trying to do what's been told.
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And that's when I really started looking into other groups you know, support groups, people's experiences, podcasts and things like that to start taking practical steps into other people who are fighting this disease and this lifestyle.
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All right, folks sit tight, We'll be right back on Transacting Value.
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Join us for Transacting Value, where we discuss practical applications of personal values, every Monday at 9 am on our website, transactingvaluepodcastcom, wednesdays at 5 pm and Sundays at noon on reedsacrossamericaorg slash radio.
00:21:06.335 --> 00:21:21.771
And that's when I really started looking into other groups you know, support groups, people's experiences, podcasts and things like that to start taking practical steps into other people who are fighting this disease and this lifestyle.
00:21:41.816 --> 00:21:42.538
Yeah, that is difficult for sure.
00:21:42.538 --> 00:21:58.067
I remember not in the exact circumstance youing, but initially hosting before listening, and it became my therapy, and so I started talking to people and working through it, because what I started to realize was the more I was trying to communicate with my son.
00:21:58.067 --> 00:22:03.988
We were long distance and he was older than yours, but we started to communicate more often.
00:22:03.988 --> 00:22:06.500
But all I could think about was work.
00:22:06.500 --> 00:22:19.226
I couldn't detach, I couldn't communicate effectively and the only thing I kept coming back to was is this the kind of person that I want to be when he's old enough to remember these conversations?
00:22:19.226 --> 00:22:23.564
Similar sort of circumstance which you were describing to you, and it's a powerful motivator.
00:22:23.564 --> 00:22:25.154
You know they say it is.
00:22:25.154 --> 00:22:26.557
Which you were describing to you, and it's a powerful motivator.
00:22:26.557 --> 00:22:27.038
You know they say it is.
00:22:27.057 --> 00:22:37.451
They say your big why generally revolves around your big who, and I think that exactly exemplifies it.
00:22:37.451 --> 00:22:50.568
Man, and to have that kind of closure, I think to know that you're not going crazy in the process, that you're actually making some headway, counts for a lot.
00:22:50.568 --> 00:22:55.962
But I think when you can attribute it and tie it to, I feel better.
00:22:55.962 --> 00:23:13.769
But I actually know it's going to make our family a more stronger unit and better for him as he's growing up and for your wife, and just to take not only that kind of ownership, but be able to take that kind of ownership and then do something with it, do something about it.
00:23:13.769 --> 00:23:15.940
What a cool feeling that must have been.
00:23:17.444 --> 00:23:32.040
It was and, as you mentioned, you know, when I started seeing that my blood sugar was leveling out, my numbers were getting better, my A1C was going down, I realized that I was starting to do so many more things that I wasn't able to do before.
00:23:32.040 --> 00:23:32.963
I was getting on the ground.
00:23:32.963 --> 00:23:34.662
I was being much more interactive with him.
00:23:34.662 --> 00:23:50.663
I kind of went from this like couch potato, kind of just not excited about anything, to being really motivated and just wanting to get back to normal, and I hadn't had that really before that rock bottom.
00:23:51.224 --> 00:23:52.326
Yeah, yeah.
00:23:52.326 --> 00:23:55.362
Well, that's cool too, and I'm not even familiar with all of the symptoms.
00:23:55.362 --> 00:24:01.186
As it applies to diabetes, is this a primary topic on your show, or what you want your primary topic to be?
00:24:02.634 --> 00:24:07.618
I mean, it definitely comes up a good bit just because it is something that I live with every day.
00:24:07.898 --> 00:24:12.622
But no it's not type 1, type 2 diabetes as a whole focused.
00:24:12.622 --> 00:24:16.404
I mean we've had different guests with different illnesses on.
00:24:16.404 --> 00:24:22.829
We've got a bunch of people lined up with lupus, different cancers, different rare diseases.
00:24:22.829 --> 00:24:24.451
So I mean it's kind of all over.
00:24:24.451 --> 00:24:42.089
But it's trying to spread information for anyone who might be interested in lupus or something like that, just a resource to hear someone's true story, not so much a science-y white paper reading, but a real life experience.
00:24:42.494 --> 00:24:43.637
Yeah, yeah.
00:24:43.637 --> 00:24:50.857
Now what is this doing for your insight into, maybe, medical facilities or medical training?
00:24:50.857 --> 00:24:55.031
I mean, is this diminishing it, enhancing it, helping it, hurting it?
00:24:55.031 --> 00:24:58.603
What is that hearing all these stories and all these experiences?
00:24:58.603 --> 00:24:59.405
What does that do for you?
00:25:00.555 --> 00:25:01.455
A little bit of everything.
00:25:01.455 --> 00:25:05.077
There's a lot of stories that are similar to mine.
00:25:05.077 --> 00:25:26.212
Okay, there's a lot of stories that are similar to mine Misdiagnoses, people going several years without being able to get a diagnosis but then, you know, I've also talked to some amazing doctors who are up to the latest and greatest trainings and techniques that are coming out, and you know, there's doctors who are incorporating things that push what they're being taught in medical school.
00:25:26.212 --> 00:25:36.847
So it's brought hope in that sense that there are a lot of good doctors out there who are trying to do new techniques, advance their skills and things like that.
00:25:36.847 --> 00:25:51.454
But it's also brought to light a lot of people who have struggled over the years due to the medical system as well, just from not having the right resources, the right support or knowing where to go or how to advocate for themselves.
00:25:52.436 --> 00:25:58.258
We have a lot of people right now who go into a doctor's office and are just given pills that mask the symptoms.
00:25:58.258 --> 00:26:07.707
And by no means am I knocking Western medicine, because there's a lot of great prescriptions and things out there that I think are 100% necessary.
00:26:07.707 --> 00:26:54.318
Whenever you go to the doctor, when's the last time they ask about your sleep, your diet, your lifestyle, your activities, your hobbies, I mean those are important things that we don't think about as medicine anymore, and that's one of the big things that I'm trying to push is the functional side of medicine and health, where getting out in the sunlight, going for walks with your significant other, spouses, family, all that kind of stuff is things that we don't talk about in the doctor's office, and those four walls that I really think are lacking in what are leading to a lot of the problems that we're having.
00:26:55.261 --> 00:26:56.224
Is that a luxury though?
00:26:56.224 --> 00:27:05.455
Do you think being able to have those conversations just because it is a business they're trying to cycle bodies through and help as many people as they can Is that a luxury cycle?